Thursday, October 31, 2013

Please Keep Praying...

     Beginning Sunday night our little Hazelnut began feeling unwell and has not felt any better since. The good thing is that we have some answers finally; maybe not the ones we want, but answers nonetheless.  On top of the BK virus (which is still causing a lot of pain and gives her bloody  and clotted urine), Hazel has also developed the Adenovirus in her bladder AND the Epstein Barr virus.  She has also, unfortunately, begun to develop the one thing we hoped that she wouldn't: VOD (veno occlusive disease).  It's a condition where some of the veins in the liver become obstructed, and her liver can no longer function properly or even be able to filter her own blood.  Some of the signs of VOD are fluid retention, weight gain and an elevated bilirubin.  She is presenting with all of these. It can be a very serious and life threatening condition, especially if left untreated.  Before her transplant even started, this disease was the main topic of our consultation meeting, and we were (and continue to be) assured that they are extremely vigilant and aggressive in treating this, and have been very successful.  We have witnessed that over the last few days.  She has been put on more medications than I can count, we have had consultations from several doctors and she has been examined by the ICU team.  As of right not, she does not need to be transferred to the ICU, but they are very aware of her situation, and if anything changes, we will be moved.  
     The goal right now is to, as quickly as possible, get the fluid and weight off because this will only exacerbate the VOD.  But the problem is that she requires more fluid to flush out the bloody urine from the BK virus.  But the more fluid we give her, the harder it is to take it off.  To help get the fluid out, she is on medications to make her urinate as frequently as possible. They have lowered her fluid slightly, and will now put a catheter in to flush out the blood and clots in the hopes that she will no longer rely on a higher fluid intake.  A urologist will be coming for a consult to possible do a scope to rule out any tears in her bladder that would have to fixed surgically. She is also still vomiting and finding it hard to take her oral medications, and right now is requiring a little bit of extra oxygen.  She has received several blood transfusions and more platelet transfusions than I can count.
     PLEASE KEEP PRAYING FOR MY DAUGHTER!  AND MAKE THE WORLD AWARE OF CHILDHOOD CANCER!  WE NEED LESS TOXIC TREATMENTS FOR OUR CHILDREN! 





76 comments:

  1. Lauren, Hazel is in my continued prayers as is the rest of your family. If there is anyway to pin the prayer clothe to her please do. Hugs and Prayers!

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  2. Oh this just makes me cry!! Praying for you sweet Hazel!!!

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  3. life is so cruel no child should have to go through pain and horrible illnesses i pray for you all and a speedy recovery for hazel stay strong xx

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  4. Oh this sweet baby of God... I will continue to pray for her and you.. Keep the faith.. This too she will over come.

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  5. I AM PRAYING FOR HAZEL TO HAVE ALL THESE WICKED DISEASES LEAVE HER BODY. IS WISH HAZEL PEACE, JOY, COMFORT AND HEALTH.

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  6. I am praying for you and the family. I was hoping Hazel would fell better for her Halloween. Not a day goes goes by that I don't think of you and your family. May God Bless you all. Thank-you for the updates.

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  7. Sending you light and love as powerfully as possible!

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  8. Oh sweet girl...prayers and more prayers and lots of love being sent your way.
    Amy Ballen

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  9. Praying for little Hazel to feel better

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  10. Lauren,
    My heart cries out to God for healing for your precious little Hazel. May the love of the Lord surround you during this difficult time.

    Cam

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  11. Praying everyday for this precious little angel! Keep fighting and have faith!!




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  12. Sending prayers from MD! Hang in there in Hazel.

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  13. It breaks my heart to read this.....no angel should have to endure so much. Lord, help these children, please.

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  14. This just breaks my heart. Little children shouldn't have to suffer like this! I pray she feels better quickly.....

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  15. Praying everyday for Hazel!!!

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  16. praying for you all.

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  17. It breaks my heart to see children going through this. It just isn't fair. Praying that your baby girl will be healed of all of this<3

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  18. Praying for your family and little Hazel! May God's will be done!

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  19. Blessed be. I pray that that sweet little girl receives the reprive she so rightly deserves. I am in Canada and follow your blog. It breaks my heart and I hope all prayers are from our lips to Gods's ears!


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  20. This is so sad. I was hoping Hazel would be feeling better to go home to her brothers and sister. I am continually praying for you Hazel and your family. No child should EVER have to endure so much. God please bless this little girl and make her better!
    XoXo

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  21. Praying for you, Hazel! Precious girl, keep fighting!
    -shelby

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  22. So sorry to hear this. My thoughts and prayers are with you all. God Bless. Pray the doctors can come together and get this resolved.

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  23. To be honest I don't pray much and I know I should, but now I am now praying for you and Hazel.

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  24. Praying for you sweet girl<3 The James Family may God allow me to suffer some of your pain in your place love & hugs sweetness

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  25. God please send all your angels to give comfort to her little body,, please God we beg you to take all the virus out of her body,,,!! we believe that you are the almighty and you have all the power to do miracles in this little angel,, please God have mercy and compassion for Hazel, in the name of you beloved son Jesus Chris..Amen

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  26. God please send all your angels to give comfort to her little body,, please God we beg you to take all the virus out of her body,,,!! we believe that you are the almighty and you have all the power to do miracles in this little angel,, please God have mercy and compassion for Hazel, in the name of you beloved son Jesus Chris..Amen

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  27. my thoughts and prayers are with you and your family

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  28. Sending lots of prayers for little Hazel so we can all see your beautiful smile again.

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  29. I think about his baby girl every day... I pray that she is not in pain and that she is healed.

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  30. So sad and sorry to hear all this unfortunate news. We are praying for little Hazelnut to get better. Susie and Arla.

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  31. Prayers to little Hazel and your entire family. Praying that this precious baby feels better and heals soon. We are still praying for you.

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  32. Praying fervently for Hazel, her team of Dr.s and nurses as well as the family. May all paths be cleared and Hazel be healed totally and completely so she may enjoy her life as a happy and productive child of God.

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  33. My prayers are with Hazel. In the name of Lord you will be cured! Amen

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  34. Keeping everyone in my prayers she is a fighter God will see her thru this

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  35. You guys are in our thoughts and prayers. Hang in there Hammersleys, hoping better days are coming your way VERY SOON.

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  36. Praying the BK virus be gone!! Praying no tears in Hazel's bladder!! Praying the Epstein Bar Disease be gone!! Praying the Veno Occlusive disease be gone!!! Praying for Hazel's team of Dr.'s and nurses and Hazel's family to stay strong!! God please clear all paths and heal this child so she may live out her days here as a happy, productive and healthy individual for many many years to come!! Amen.

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  37. All the way from Germany we send you all the strengh and all the love we have for you and your family. And of course for your sweet Hazel!
    Hope she will feel better very soon!

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  38. Praying for intervention and healing to get you all through this difficult and dangerous phase of your journey.
    "May the Lord make his face to shine upon you,
    and be gracious to you.
    May the Lord lift up his countenance upon you,
    and give you peace."
    Keeping you all in my heart, thoughts and prayers.

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  39. Sending extra prayers for precious Hazel's healing and for strength for your sweet family. I ask God every day to send Hazel my strength. I wish I could take the pain for her. Praying, praying, praying!!

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  40. Blessings upon blessing heaped on you sweet Hazel. The Lord's peace and healing. In Jesus' name.

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  41. God give you, your family, the doctors, the caring team, and of course Hazel STRENGTH! What a testing journey you are on. One that not too many people would be able to travel with the grace and faith you have shown. Love to you all.

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  42. Hazel, I am sending extra prayers, asking our Lord above to help you, for the medicine to work, so that we can see those wonderful Hazel smiles again. There are so many prayers going out for you and for your family that I believe your room is full of angels watching over you and caring for you. You are all loved by so many. Prayers of strength for your mommy and daddy!

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  43. Prayers for you precious Hazel ��

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  44. I am keep praying for your daughter. God will never forget her and will be with her when she goes through hard time. Hezel must get recovered soon!

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  45. Father, I pray for Hazel and for her family. Give them peace, comfort, and consilation through your word. I pray that they will rely on your Holy Word now more than ever. I pray that Hazel will be comforted both physically and emotionally and that she will begin recovering from these horrible treatments. In Christ's name, Amen!

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  46. Hazel is a strong girl and I pray for her to keep that strength going. I also pray for God to put his healing hands upon her body and guide the doctors in the treatment. Your family is are also in my thoughts and prayers as they are a key factor in her healing process and they are battling the storm. Praying for healing, health, emotional and physical strength, and guidance. I thank God for carrying Hazel and her family this far and I know with his wisdom and grace he shed his glory of comfort and grace. As the Lord Jesus is our true savior. Amen.

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  47. Oh Lauren....your poor little darling girl. My heart is breaking reading your latest update. I will continue to pray for this little one. I'm so sorry to learn she is going through all of this on top of everything else she's been through. It is so sad to see her looking this way, I pray she'll be back to her smiling happy self soon.

    Dear Father, We pray for Hazel's little frail body to be healed, and for all of the present issues that cropped up to be resolved in a positive way, and for the family to have the strength and endurance as they watch their little darling girl battling with this insidious and awful disease. I pray for Hazel's restoration to be full and speedy, which only You my God can accomplish. There is nothing too big for You to accomplish. Please, my Lord, please take her in Your arms and wipe away the pain, and wipe away the current set-backs. We pray that You hear our prayers, and that You respond to the cries of your children, in Jesus Christs' name, Amen and Amen.

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  48. it hurts me so much to read of all your suffering. no matter what age, she is your child. I am going through something with my oldest boy and had such a scare last week. even at 50, he is still my baby. God bless you all.

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  49. We pray in France for Hazel !

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  50. Prayer from Oklahoma to you! Tell her how beautiful she is and we hope she feels better soon!

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  51. Prayer from Oklahoma to you! Tell her how beautiful she is and we hope she feels better soon!

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  52. Please Pray to St. Peregrine to intercede for them, he is the patron saint of cancer patients.

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  53. My heart is breaking!! I feel you all are part of my family as I am constantley reading updates and am so saddened by this one! Poor Hazel looks so exhausted! I am typing through tears! I include Hazel, your family and the doctors in my prayers ALL THE TIME. Will be praying for this to pass quickly and Hazel to beat this horrid disease with no more setbacks.
    Lord please watch over this family, guide them along with the Health Team. Enter Hazel with your mighty hand and restore her health!

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  54. Everyday Hazel is in my thoughts and prayers, especially today. I just got back from attending mass during lunch time and prayed hard for her. Lauren and Aaron, I know exactly how you feel and what Hazel and you all are going through....because I been in your shoes 10 years ago when my 3 year old son was diagnosed with the exact same diagnosis and same treatment protocol.....with countless medications, blood and platelet transfusion etc. It's a tough road.....literally a roller coaster ride...but our Lord is the one in control....the great physician....the great healer! Hang in there....despite all these set-backs, there is light at the end of the tunnel!!
    May you see that light very soon. Praying for Hazel’s speedy recovery. Sending you all lots of prayers and hugs.

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  55. This is so heart breaking. I am sending prayers and positive thoughts to your precious baby girl. She is so brave!

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  56. Praying for you beautiful little princess! Stay strong Lauren! God bless your family.

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  57. Aaron, you are all in our prayers- especially Hazel! Such a trial and a terrible ordeal She is blessed to have such loving and vigilant parents, and all that modern medicine has to offer. Praying for her and for you all!!

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  58. God is with your miraclebaby!!!!!

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  59. Praying Hazel I know God will restore and strengthen u r body.... we will keep on praying Rapunzel♡ Valiente Valentina

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  60. Stay strong!!!! my daughter went through the same with VOD. i am praying full for her and to see her up and running in no time. Just take one day at a time thats what i did and always remember it could be worse. May GOD heal her body fast AMEN

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  63. Sending prayers!!!!! You can pull this angel you are very strong!!

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  64. Praying! I'm so sorry you all are in this battle, may God continue to arm His little warrior!
    Father I join in petition with all that are lifting Hazel up to Your Throneroom. Please be with her and keep her strong. Please provide Your wisdom for the medical team and help them minister to Hazel's needs. I ask also Father for Your Holy presence to cover Hazel and her family as they continue to battle this monster. In Jesus' name we give it to You and thank You for Your Grace and Mercies!. Hugs from New Mexico sweet Hazel.

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  65. Poor little baby. I pray for her every day and have been following her story since the "send pizza" article came out. You are a wonderful family and I pray that little Hazel is healed completely.

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  66. Hazel and the whole Hammersley family are my prayers daily. My heart aches for you but my faith remains strong that God will reunite all of you in GOOD health soon. I do not understand why sweet Hazel must go through this hell but I believe God is with her and comforting her. Remain strong, Lauren and Aaron! You are a heros to every parent that has the pleasure to know you!

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  67. I think about dearest little Hazel every day and pray that a miracle for her is just around the corner. My heart truly breaks reading the blog and seeing her looking so sad. I pray for her recovery to be fast and soon.

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  68. We are praying hard for you and from our family... May god help you all through this dark time... xo

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  69. We are all keeping dear Hazel in our thoughts at Big Springs.

    (Ms. Perry)

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  70. Sending lots of prayers up for you tonight, Hazel! Feel better soon!!

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  71. Please Lord be with Hazel & her sweet family! Lord please bless her, help her body from failing her. Lord I ask that you bring peace & comfort onto her. Let your glorious will be done in Hazels life Lord! Please help her squash this nasty cancer, and heal the viruses that are causing this sweet girl harm. Hear our prayers for Hazel Lord! Work your miracles in her life. With agape love I say this prayer in your glorious name - Amen!

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